Patient Stories

Module 1: Understanding Ovarian Cancer

Ariana’s story: How did you find out you had ovarian cancer?
Ariana describes the symptoms and experiences she had leading up to her diagnosis of ovarian cancer at the young age of 17.
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Beatrice’s story: How did you find out you had ovarian cancer?
Beatrice describes the symptoms and experiences she had leading up to her diagnosis of ovarian cancer.
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Shirley’s story: How did you find out you had ovarian cancer?
Shirley describes the symptoms and experiences she had leading up to her initial diagnosis of ovarian cancer.
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Ariana’s story: What advice do you have for other patients on their journey with ovarian cancer?
Ariana shares practical advice for younger women with ovarian cancer. She says it is important to reach out for support and to talk to survivors about their treatment and surgery experiences. She encourages young women to pay very close attention to their bodies and to seek immediate medical attention if they notice any signs or symptoms that don't feel right or look right.
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Beatrice’s story: What advice do you have for other patients on their journey with ovarian cancer?
Beatrice shares practical advice for other patients on their journey with ovarian cancer. She recommends staying as healthy as possible and working closely with your doctor on your treatment plan. When visiting the doctor, she recommends writing down questions beforehand, and not being shy to ask questions.
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Shirley’s story: What advice do you have for other patients on their journey with ovarian cancer?
Shirley shares her experiences and advice for other people on their journey with ovarian cancer. She emphasizes the importance of having a healthcare team you can trust, and having a caregiver join you at medical appointments to take notes. Shirley's 11 years with ovarian cancer have been a long and hard battle, but she will always keep fighting. Participating in a peer support program has helped her immensely and she encourages others to join support programs for connection with like-minded people.
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Module 2: Diagnosing Ovarian Cancer

Shirley's story: How was your ovarian cancer diagnosed?
Shirley describes her ovarian cancer diagnosis experience, which required immediate surgery. Shirley's ovarian cancer diagnosis came as a huge shock to her and her family. She shares her story in the hope of encouraging other women to act on unusual symptoms quickly.
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Shirley's story: How was your ovarian cancer recurrence diagnosed?
Shirley describes how her ovarian cancer recurrence was diagnosed. She talks about the ongoing monitoring she receives, which includes regular CA-125 blood testing, as well as CT and PET scans. Shirley has had a few recurrences and shares her story in the hope that it will help other women with ovarian cancer.
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Ariana's story: What challenges did you face as a young woman with ovarian cancer?
Ariana reflects on the unique experiences and challenges she faced when she was diagnosed with ovarian cancer at the young age of 17. She talks about the emotional impact of her rare diagnosis, and the unique treatment and surgery decisions she faced at such a young age. Ariana shares her story in the hope that it will help other young women with ovarian cancer.
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Ariana's story: What has been your experience with genetic testing for ovarian cancer?
Ariana describes her experiences with genetic testing for ovarian cancer, and her family history of the rare DICER1 genetic mutation. Other members of her family have also undergone genetic testing to be proactive in preventing and monitoring for ovarian cancer. She shares her story in the hope that it will help other women with rare genetic mutations.
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Module 3: Treating and Managing Ovarian Cancer

Ariana’s story: What successes and challenges have you had with your ovarian cancer treatment?
Ariana describes the treatment successes and challenges she faced when she was diagnosed with ovarian cancer at the age of 17. She talks about the surgery and chemotherapy she received, as well as the physical and emotional toll of her treatment journey at such a young age. She shares her story in the hope that it will help other young women with ovarian cancer.
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Beatrice’s story: What successes and challenges have you had with your ovarian cancer treatment?
Beatrice talks about the successes and challenges of her ovarian cancer journey so far. She reflects on the meaningful connections and friendships she has made through participating in fundraising walks and being part of the NOCC community. She encourages others to join support programs to connect with like-minded people.
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Shirley’s story: What successes and challenges have you had with your ovarian cancer treatment?
Shirley describes the successes and challenges she has faced with her ovarian cancer treatments, and shares some of the ways she has coped. Shirley has had a few recurrences of ovarian cancer since her initial diagnosis. She talks about the physical and emotional toll of the treatments and rounds of chemotherapy. She reflects on the importance of persevering, even in the hardest times. The incredible support from her husband and healthcare team has helped her get through.
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Ariana’s story: What was your experience with surgery for your ovarian cancer?
Ariana reflects on the experiences she had with surgery when she was diagnosed with ovarian cancer at the young age of 17. She had fertility-sparing surgery, to spare her uterus and one ovary. Now 20 years later, she shares her perspective in the hope that it will help other young women with ovarian cancer discuss surgical options with their doctors.
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Beatrice’s story: What has been the biggest challenge for you with ovarian cancer?
Beatrice reflects on the challenges of her ovarian cancer diagnosis through the years, including managing symptoms such as neuropathy. She emphasizes that every woman's ovarian cancer journey is different, therefore she encourages others to talk with their doctors about developing a care plan based on their unique ovarian cancer experience.
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Shirley’s story: What has been the biggest challenge for you with ovarian cancer?
Shirley reflects on the challenges of her ovarian cancer journey so far, which includes staying positive and the impact of her diagnosis on her husband and family. She is determined to persevere and is extremely grateful to her healthcare team. She shares her story in the hope that it will help other women with ovarian cancer.
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